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Quotes about Pku from the world's top natural health / natural living authors

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"We have identified a deterministic gene for PKU—meaning that if you are a carrier of it you will express pku symptomology—and we know that early intervention can lead to an effective treatment (a special diet low in phenylalanine) that enables affected persons to grow up with normal brains. The case is much different for ApoE-4, since it is not a deterministic gene, and since we lack effective treatments for persons who may be carrying the gene." - Peter J. Whitehouse and Daniel George, The Myth of Alzheimer's: What You Aren't Being Told About Today's Most Dreaded Diagnosis (Get the book.)

"PKU. If you don't have pku, DL-phenylalanine is perfectly safe. Oil Those Joints Cetyl myristoleate or CMO is less known than glucosamine or chondroitin, but is also worth knowing about if you have arthritis pain. Clinical studies have shown that it increases joint mobility for up to 60 percent of the people who take it. CMO is an all-natural oil found in certain animals like cows, whales, mice, and beavers. Harry W. Diehl, Ph.D., a researcher at the National Institutes of Health, first discovered it in 1972. It has been used in a lot of arthritis research over the last 25 years." - Jonny Bowden, Ph.D., C.N.S., The Most Effective Natural Cures on Earth: The Surprising, Unbiased Truth about What Treatments Work and Why (Get the book.)

"For example, the treatment of pku requires the restriction of phenylalanine intake but not total protein. This is accomplished by using a specially designed semisynthetic medical formula. Infants and children with IEM must obtain most of their protein from specialized metabolic formulas. Natural foods seldom provide more than 25% (often 10%) of the protein requirements of infants and children with amino acid, organic acid, or urea cycle disorders." - Ann M. Coulston and Carol J. Boushey, Nutrition in the Prevention and Treatment of Disease (Get the book.) "Many infants are too metabolicaliy fragile to maintain appropriate plasma levels with breastfeeding; for example, some infants with pku are able to tolerate partial breastfeeding and maintain low plasma phenylalanine levels. Breastfeeding is overtly contraindicated for infants with some disorders such as galactosemia. 6. Feeding Poor appetite is not uncommon for children with IEM, especially urea cycle disorders, MSUD, and the organic acidemias. Reasons for poor appetite and poor feeding may be organic, behavioral, or both." - Ann M. Coulston and Carol J. Boushey, Nutrition in the Prevention and Treatment of Disease (Get the book.) "Because the amino acid phenylalanine is one of the metabolites of aspartame, it should be avoided by women with pku. Maternal plasma levels of phenylalanine after ingestion of aspartame-containing foods, in normal amounts, are no higher than after the ingestion of protein-containing meals [57]. Use of aspartame within FDA guidelines appears to be safe during pregnancy [49]. Acesulfame potassium (acesulfame-K; Sweet One, Sun-ette) is considered to be safe during pregnancy. Sucralose (Splenda), derived from sucrose, is the most recently FDA-approved high-intensity sweetener." - Ann M. Coulston and Carol J. Boushey, Nutrition in the Prevention and Treatment of Disease (Get the book.)

"National pku News website, http://www.pkunews.org/. National Soft Drink Association. "Objections of the National Soft Drink Association to a Final Rule Permitting the Use of Aspartame in Carbonated Beverages and Carbonated Beverage Syrup Bases and a Request for a Hearing on the Objections" (Docket No. 82F-0305, Draft, July 28, 1983) appearing in Congressional Record 131, no. 58 (1985): 5507-11. http://www.dorway.com/ nsda.html. Novick, Jeff. "Stevia, the Herbal Sweetener—How Safe Is It Really?" Chef Jeff's Weekly Health Update, October 23, 2000. http://www.aboutbreathing.com/articles/stevia." - Connie Bennett, C.H.H.C. with Stephen T. Sinatra, M.D., Sugar Shock!: How Sweets and Simple Carbs Can Derail Your Life-- and How YouCan Get Back on Track (Get the book.)

"Down syndrome, and phenylketonuria, a.k.a. pku), developmental disorders (e.g., autism, intellectual disabilities), and neuromotor disorders (e.g., cerebral palsy, spina bifida). Including children who are born prematurely or with a low birth weight, considered to be at high risk for developing a special health care need, as well as children with some common chronic health concerns (e.g., asthma) raises the overall prevalence to an estimated 30% [3]." - Ann M. Coulston and Carol J. Boushey, Nutrition in the Prevention and Treatment of Disease (Get the book.)

"Do not take DLPA if you have high blood pressure, or are prone to panic attacks, are taking levodopa for treatment of Parkinson's disease, are pregnant, have melanoma, or have pku (a rare, inherited metabolism disorder). DMAE (dimethylaminoethanol) Increase daily dosage from 150 mg to 650-1,650 mg. Do not exceed a daily supplement of 1,650 mg. May be overstimulating for some people. Headaches, muscle tension, and irritability may occur. Do not take if you have epilepsy, a history of convulsions, or bipolar disease." - Gary Null and Amy McDonald, The Food-Mood Connection: Nutrition-based and Environmental Approaches to Mental Health and Physical Wellbeing (Get the book.)

"PKU is a rare genetic disorder characterized by the inability to break down phenylalanine. Aspartame is made from phenylalanine, which is the reason Equal comes with a warning label for In those patients who are obese, have peptic ulcers, or are taking diuretics, the effectiveness of glucosamine sulfate is reduced. So if this applies to you, work with a health-care provider to increase the doses shown here. Those who are allergic to sulfates may take glucosamine hydrochloride and not glucosamine sulfate, and they should avoid chondroitin sulfate." - Jonny Bowden, Ph.D., C.N.S., The Most Effective Natural Cures on Earth: The Surprising, Unbiased Truth about What Treatments Work and Why (Get the book.)

"Some people affected by pku (page 354) are deficient in tyrosine. Tyrosine levels are occasionally low in depressed (page 145) people.11 Any person losing large amounts of protein, such as those with some kidney diseases, may be deficient in several amino acids (page 465), including tyrosine.12 How much is usually taken? Most people should not supplement with L-tyrosine. Some human research with people suffering from a variety of conditions used 100 mg per 2.2 pounds of body weight, equivalent to about 7 grams per day for an average-sized person." - Alan R. Gaby, M.D., Jonathan V. Wright, M.D., Forrest Batz, Pharm.D. Rick Chester, RPh., N.D., DipLAc. George Constantine, R.Ph., Ph.D. Linnea D. Thompson, Pharm.D., N.D., The Natural Pharmacy: Complete A-Z Reference to Natural Treatments for Common Health Conditions (Get the book.) "A controlled trial demonstrated that regular use of BCAAs by adolescents and young adults with pku, improved performance on some tests of mental functioning.29 This outcome makes sense because BCAAs may compete with phenylalanine, reducing its toxic effects. In tardive dyskinesia (page 425), phenylalanine levels have also been reported to be elevated. As a result, one group of researchers gave tardive dyskinesia patients BCAAs (from 150 mg per 2.2 pounds body weight up to 209 mg per 2.2 pounds body weight) after breakfast and one hour before lunch and dinner for two weeks." - Alan R. Gaby, M.D., Jonathan V. Wright, M.D., Forrest Batz, Pharm.D. Rick Chester, RPh., N.D., DipLAc. George Constantine, R.Ph., Ph.D. Linnea D. Thompson, Pharm.D., N.D., The Natural Pharmacy: Complete A-Z Reference to Natural Treatments for Common Health Conditions (Get the book.)

"Caution: Do not take these supplements if you are pregnant or nursing; if you take an MAO inhibitor drug or levodopa; or if you suffer from panic attacks, diabetes, high blood pressure, or pku. Vitamin B complex 50 mg of each major B vitamin 3 times daily, with meals (amounts of individual vitamins in a complex will vary). plus extra vitamin B2 (riboflavin) 50 mg 3 times daily, with meals. and vitamin b3 (niacin) or niacinamide 50 mg 3 times daily, with meals. Do not exceed this amount. and vitamin B6 (pyridoxine) 50-75 mg 3 times daily, with meals." - Phyllis A. Balch, CNC, Prescription for Nutritional Healing, 4th Edition: A Practical A-to-Z Reference to Drug-Free Remedies Using Vitamins, Minerals, Herbs & Food Supplements (Get the book.) "Caution: Do not take this supplement if you are pregnant or nursing, or suffer from panic attacks, diabetes, high blood pressure, or pku. Essential fatty acids As directed on label Protects against cell damage, (black currant seed 3 times daily, with meals. Helps to reduce pain and oil, flaxseed oil, Kyolic- fatigue. EPA from Wakunaga, or primrose oil) Fibroplexfrom Metagenics As directed on label. A formula containing vitamins Bi and B§ plus magnesium, manganese, and malic acid. Fibro-Xfrom Olympian Labs As directed on label. To relieve pain." - Phyllis A. Balch, CNC, Prescription for Nutritional Healing, 4th Edition: A Practical A-to-Z Reference to Drug-Free Remedies Using Vitamins, Minerals, Herbs & Food Supplements (Get the book.) "Do not exceed phenylalanine if you are the recommended dosage, pregnant or nursing a baby, or if you suffer from panic attacks, diabetes, high blood pressure, or pku. Do not take tyrosine if you are taking an MAO inhibitor drug. Para-aminobenzoic 100 mg daily. A B vitamin that stimulates vital acid (PABA) life functions. Vitamin C 3,000-6,000 mg daily, Important in glandular function with in divided doses. and stress response. bioflavonoids Zinc 50-80 mg daily. Zinc deficiency can result in Do not exceed a total of impaired sexual function." - Phyllis A. Balch, CNC, Prescription for Nutritional Healing, 4th Edition: A Practical A-to-Z Reference to Drug-Free Remedies Using Vitamins, Minerals, Herbs & Food Supplements (Get the book.)

"Tyrosine supplementation may be beneficial in some people with pku, though the evidence is conflicting.10 Where is it found? Dairy products, meats, fish, wheat, oats (page 716), and most other protein-containing foods contain tyrosine. L-tyrosine has been used in connection with the following conditions (refer to the individual health concern for complete information): Rating Health Concerns •k-kii Depression (page 145) Phenylketonuria (page 354) (for deficiency) Alcohol withdrawal support (page 12) Parkinson's disease (page 345) Who is likely to be deficient?" - Alan R. Gaby, M.D., Jonathan V. Wright, M.D., Forrest Batz, Pharm.D. Rick Chester, RPh., N.D., DipLAc. George Constantine, R.Ph., Ph.D. Linnea D. Thompson, Pharm.D., N.D., The Natural Pharmacy: Complete A-Z Reference to Natural Treatments for Common Health Conditions (Get the book.)

"Researches are familiar with phenylketonuria due to an absence or marked diminution of the enzyme phenylalanine hydroxylase (with a resultant build-up of phenylalanine and deficiency of tyrosine) due to an absent or defective autosomal recessive gene—the pku genotype. If there is no physical trait or abnormality, i.e., abnormal phenotype there is no physical manifestation of a particular genotype." - Fred A. Baughman, Jr., M.D. and Craig Hovey, The ADHD Fraud: How Psychiatry Makes "Patients" of Normal Children (Get the book.)

"The effects of pku can be controlled by a special diet. fa States commonly require newborns to be tested for pku. pituitary gland (pi-tooh-uh-ter-ee) A small gland, attached to the base of the brain and controlled by the hypothalamus, that functions in the endocrine system. The pituitary gland secretes many hormones: some control the actions of other glands, while others influence growth, metabolism, and reproduction. PKU See phenylketonuria. placebo (pluh-see-boh) A substance containing no active drug administered to a patient participating in a medical experiment as a control." - James Trefil, Joseph F. Kett, and E. D. Hirsch, The New Dictionary of Cultural Literacy: What Every American Needs to Know (Get the book.)

"As a result, the FDA requires all packaged goods that contain aspartame to bear a warning notice for the benefit of people with pku. Some scientists believe that high aspartame intakes (more than a few artificially sweetened foods a day) could pose some risk of mental retardation in the babies of pregnant women who carry the trait for pku, but do not themselves have the disease. The FDA disputes this claim. Beyond pku, there are other safety questions surrounding the use of aspartame." - Michael F. Jacobson, Ph.D., Lisa Y. Lefferts and Anne Witte Garland, Safe Food: Eating Wisely In A Risky World (Get the book.)

"Tyrosine supplementation may be beneficial in some people with pku, although the evidence4 remains contradictory. Where Is It Found? Dairy products, meats, fish, wheat, oats, and many other foods contain tyrosine. Tyrosine Has Been Used in Connection with the Following Conditions* Ranking Health Concerns Secondary Depression (p. 50) Other Alcohol withdrawal support (p. 6) Phenylketonuria (PKU) *Referto the Individual Health Concern for Complete Information Who Is Likely to Be Deficient? Some people affected by pku are deficient in tyrosine." - Schuyler W. Lininger, Jr. DC, The Natural Pharmacy: Complete Home Reference to Natural Medicine (Get the book.)

"People with pku cannot properly process the isolated amino acid phenylalanine, and they have to follow severely restricted diets. If they ingest a lot of products with phenylalanine, such as aspartame-sweetened drinks and foods, they could develop brain damage, become retarded or even die," Dr. Hull explains. HOW IS ASPARTAME (NUTRASWEET OR EQUAL) MADE? It's comprised of 50 percent L-phenylalanine (an amino acid), 40 percent L-aspartic acid (another amino acid), and 10 percent methanol. "Methanol is a wood alcohol that breaks down chemically into formic acid and formaldehyde," Dr." - Connie Bennett, C.H.H.C. with Stephen T. Sinatra, M.D., Sugar Shock!: How Sweets and Simple Carbs Can Derail Your Life-- and How YouCan Get Back on Track (Get the book.)

"Phenylalanine is the toxic component seen in the childhood disorder called phenylketonuria or pku. In this disorder, phenylalanine accumulates in the blood and hence brain, in very high concentrations. Carriers for the gene develop blood levels of phenylalanine twice as high as those of normal people, when consuming an equal amount of aspartame. Aspartic acid is one of the excitotoxic amino acids, and has been shown to produce significant damage to the brain in higher concentrations." - Russell L. Blaylock, M.D., Health and Nutrition Secrets (Get the book.)

"Caution: Do not take this supplement if you are pregnant or nursing a baby, or if you suffer from panic attacks, diabetes, high blood pressure, or pku. 5-Hydroxy L-tryptophan (5-HTP) As directed on label. Many clinical studies have shown excellent results with both tension headaches and migraines. Glucosamine sulfate As directed on label. A natural alternative to aspirin and other nonsteroidal antiinflammatory drugs (NSAIDs). L-Tyrosine plus L-glutamine plus quercetin As directed on label. 500 mg twice daily. 500 mg twice daily. For relief of cluster headaches." - Phyllis A. Balch, CNC, Prescription for Nutritional Healing, 4th Edition: A Practical A-to-Z Reference to Drug-Free Remedies Using Vitamins, Minerals, Herbs & Food Supplements (Get the book.)

"The effects of pku can be controlled by a special diet. fa States commonly require newborns to be tested for pku. pituitary gland (puh-TOOH-uh-tair-ee) A small gland, attached to the base of the brain and controlled by the hypothalamus, that functions in the endocrine system. The pituitary gland secretes many hormones: some control the actions of other glands, while others influence growth, metabolism, and reproduction. PKU See phenylketonuria. placenta (pluh-SEN-tuh) An organ that forms in the uterus after the implantation of a zygote." - E. D. Hirsch, The Dictionary of Cultural Literacy (Get the book.)

"As a result, the FDA requires all packaged goods that contain aspartame to bear a warning notice for the benefit of people with pku. Some scientists believe that high aspartame intakes (more than a few artificially sweetened foods a day) could pose some risk of mental retardation in the babies of pregnant women who carry the trait for pku, but do not themselves have the disease. The FDA disputes this claim. Beyond pku, there are other safety questions surrounding the use of aspartame." - Michael F. Jacobson, Ph.D., Lisa Y. Lefferts and Anne Witte Garland, Safe Food: Eating Wisely in a Risky World (Get the book.)

"The disorder is called phenylketonuria, or pku. People with pku have chronically elevated levels of phenylalanine. If left untreated, a child bom with PKU could become mentally retarded. With treat- A low-PHE diet to treat ment—that is, a diet in which the phenylalanine con- a rare genetic disorder. tent is very closely regulated—normal mental development is all but assured. But there can be serious problems—hyperactivity, short attention span and impaired motor skills—for those who go of! the prescribed low-protein diet." - Prevention Magazine Editors, The Complete Book of Vitamins & Minerals for Health (Get the book.)

"In that study, children with pku on a strict diet had low levels of certain vitamin K-dependent proteins needed for normal blood clotting.59 Are there any side effects or interactions? Refer to the individual supplement for information about any side effects or interactions. PHOTOSENSITIVITY People with photosensitivity have an immunological response to light, usually sunlight. They typically break out in a rash when exposed to sunlight; how much exposure it takes to cause a reaction varies from person to person." - Alan R. Gaby, M.D., Jonathan V. Wright, M.D., Forrest Batz, Pharm.D. Rick Chester, RPh., N.D., DipLAc. George Constantine, R.Ph., Ph.D. Linnea D. Thompson, Pharm.D., N.D., The Natural Pharmacy: Complete A-Z Reference to Natural Treatments for Common Health Conditions (Get the book.)

"However, we have already seen that in some cases even a proven genetic disorder, such as pku, can be prevented once the environmental trigger is identified. The investigators also claimed that, because autism is a rare disorder, "even modest concordance rates in MZ twins indicate the action of substantial genetic influences."2 Not necessarily. For example, even 100% identical twin concordance does not, in and of itself, prove anything about genetics." - Jay Joseph, The Missing Gene: Psychiatry, Heredity, and the Fruitless Search for Genes (Get the book.) "Thus, we cannot determine "how much" of the "ADHD phenotype" variation is attributable to genes because, like pku, a timely (and possibly simple) environmental intervention could prevent a condition with a stated heritability as high as 1.0. Conclusions The presumed genetic basis of ADHD rests on the results of family, twin, and adoption studies. Although research seems to indicate that ADHD is familial, the fact that families share a common environment as well as common genes permits no valid conclusions in support of genetics." - Jay Joseph, The Missing Gene: Psychiatry, Heredity, and the Fruitless Search for Genes (Get the book.) "However, as the example of pku shows, a heritability percentage or estimate says nothing about the ability to treat or prevent a disorder, or about the magnitude of genetic influences, and its use should therefore be discontinued in psychiatry and psychology. # # # Psychiatric geneticists and others view attention-deficit hyperactivity disorder, the most frequently diagnosed psychiatric condition among school-age children, as being strongly influenced by genetic factors. In the following chapter I examine the evidence they put forward in support of this claim. l.Hirsch, 2004, p. 137. 2." - Jay Joseph, The Missing Gene: Psychiatry, Heredity, and the Fruitless Search for Genes (Get the book.)

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